Chronic Pain and Spinal Cord Injury Project

Aim

The aim of this initiative was to provide web-based resources for consumers who live with spinal cord injury and chronic pain in addition to a clinical navigation tool to assist clinicians to develop a pain management plan for SCI-related pain for their patients.

The project also resulted in the development of a service model providing assessment and management of people with SCI and chronic pain which incorporates use of telehealth technology.

Benefits

The project has developed extensive resources and a service model that are now accessible to consumers and clinicians.

Summary

This project has been funded by the NSW Lifetime Care and Support Authority and has provided a unique opportunity to develop resources and services for people experiencing chronic pain after spinal cord injury.

Background

For further detail about the chronic pain and spinal cord injury resources, please refer to the website

For further detail regarding the process for developing these resources, please refer to Reports1 – 4 Chronic Pain and Spinal Cord Injury Project

Partnerships

  • NSW Lifetime Care and Support Authority (LTCSA)
  • Paraquad NSW
  • Spinal Cord Injuries Australia
  • HammondCare
  • John Walsh Centre for Rehabilitation Research
  • State Spinal Cord Injury Service clinical network and Directorate
  • Lismore Base Hospital
  • Tamworth Hospital
  • Northern NSW Medicare Local
  • Auburn Health One

Key Dates

The Chronic Pain and SCI website content was launched at the Spinal Cord Injury Connections Forum 13th October 2014.

The Spinal Cord Injury Pain Book was launched by Paralympian Liesl Tesch AM at Greenwich Hospital on 13th November 2014.

The SCI Pain Clinic @ Greenwich Hospital has completed a 12 month pilot phase with 7 participants in the program. The multidisciplinary pain clinic provides specialist care for individuals with persistent pain after SCI using a model of service delivery that includes on-site clinic attendance with telehealth to help overcome the logistical barriers of mobility, personal care, distance and transport which inhibits many people with SCI from accessing specialist pain services throughout NSW.

Pilot Sites

  • February 2014 to  February 2015 - SCI Pain Clinic at Greenwich Hospital 
  • 2013 to 2015 - Tamworth Integrated Pain Service (website materials)
  • 2013 to 2014 - SCIA (website materials)
  • 2013 to February -  2015Orange Pain Clinic (website materials)

Implementation Sites

Website resources freely accessible on the NSW ACI website for consumers and clinicians.

SCI Pain Clinic @ Greenwich Hospital available to participants of LTCSA or with workers compensation insurance cover. Additional options for a publicly funded service are currently being explored.

Evaluation

The initiative will be evaluated in the following ways:

  1. Consumer website – focus groups of consumers and posting of an online survey to facilitate feedback
  2. Clinician website (SCI Pain Navigator) – focus groups of clinicians in specialist centres, primary care, medical, allied health and nursing perspectives are to be examined in addition to availability of an online survey.
  3. The SCI Pain Navigator will also be assessed as part of the Knowledge Translation studies currently being conducted through the John Walsh Centre for Rehabilitation Research
  4. The SCI Pain Clinic @ Greenwich Hospital has undergone iterative evaluation of staff and patient satisfaction through the pilot phase with feedback helping to shape the development of the clinic. 

Related Initiatives

The website content has been developed through collaboration with members of the NSW ACI Pain Management Network and the NSW State Spinal Cord Injury Service.

The clinician and consumer website resources are included in the evaluation of the knowledge translation research being undertaken at the John Walsh Centre for Rehabilitation Research.

The project has involved extensive collaboration with Hammdon Care and the Greenwich Hospital SCI Pain Clinic team for development of the SCI Pain Book, the online resources and the SCI Clinic model of care. 

Further Details

Contact

Jenni Johnson
Manager, Pain Management Network
jenni.johnson@health.nsw.gov.au
02 9464 4636

Chris Shipway
Director, Primary Care and Chronic Services
chris.shipway@health.nsw.gov.au
02 9464 4603

Page Top | Added: 12 February 2015 | Last modified: 12 February 2015

ACI
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Contact:
Jenni Johnson
Manager, Pain Management Network
Email
02 9464 4636
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